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How I'm doing (after 8th infusion): This is getting old

You get a raw post today. Am I still living with a pretty damn good quality of life (independent, mobile, manageable symptoms)? Yes. Am I fucking tired of this shit? Yes. 

My body temperature is now equallty hot and cold at the same time. I can't sleep through the night. My skin is out of whack: I get tiny little blisters that pop up and feel like burns; my face is cracking and peeling, and any type of lotion, no matter what formulation I put on it, burns, and it's perpetually red, and the lotion manages to get onto my contacts no matter how hard I try to avoid that, so then I can't wear them AND see. And don't even get me started on the brain fog. My taste buds are out of whack.

I miss working ... but life is not normal enough where working would be good to work right now (I have the luxury of choice). 

I'm just tired of this. 

That is how I'm doing. Thanks for listening.

<end rant> 

  • Special shout out to my friend Beth, who flew in from Seattle to be a roommate for a few days. 

  • I wrote an investors' report for everyone who donated to my wellness fund. 

For my last chemo infusion scheduled for February 22, I'm going to ask folks to ring a bell or play a celebratory song with me that day. Stay tuned for more details.

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